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Post by PastaBaby on May 31, 2011 7:33:43 GMT -5
I had an amazing day today  , a Birthday celebration, for a person I've known since his birth! Darren is 46 now and has been living with ALS for 4 years! He is the father of 4 great kids! My parents are his parents best friends! His entire family, as well as, my entire family were there + many, many other dear friends. Darren is now on a respirator and feeding tube. But, he still communicates, as he has a computer like Stephen Hawking - we sometimes have to back-up our conversation, as he catches up and comments! That's not a problem, though. So happy he has a way to communicate! He has an amazingly positive attitude - despite his circumstances! Here's a link from a clinical trial at Stanford that his Mom got him into (she's a retired UCSF nurse) - stanmed.stanford.edu/2008summer/breath_of_hope.html . And here's a link from my Dad's SmugMug site - there are photos of him throwing out the first pitch at the A's first "Lou Gehrig Day" - jvp.smugmug.com/Darren-Dent . ALS is a cruel, cruel disease - you are slowly entombed in your own body - yet none of your brain is affected!  If you are so inclined to, please donate to The ALS Association www.alsa.org/ , for yourself, for Darren or in Adam's name!  Sounds like a beautiful day - sharing love with others. |
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Post by Deleted on May 31, 2011 9:09:21 GMT -5
kapsiz, thatnks for sharing your beautiful day. I will keep your friend in my thoughts.
Your pics are beautiful. Your niece is the one moving to So CA because of her dancing, right? She is beautiful. Your nephew is adorable! :D
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Post by glamnana on May 31, 2011 9:28:40 GMT -5
kapsiz--- You are a dear friend to Darren. He is lucky to have you. I have no personal experience with ALS, but it is a devastating disease. Puts your own health issues in perspective. And what a loving Auntie you are to both your niece and nephew!
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Post by littledarkangelpf on Jun 2, 2011 15:27:57 GMT -5
Littledarkangel, When it rains it pours sometimes, yes? Sorry about the stove and the car break-in. Double whammy but your attitude really impresses me. Taking situations that are troublesome and turning them into positives really shows moxy! Hope you get the insurance thing figured out..I'll be thinking of you!  Yes! and Thanks! Sadly we decided to take the loss :-/ Im out of a GPS, but the company my husby and i work for is buying him a new ipod. Soooooo i just gonna wait till the next iphone comes out. I am in love with my new stove tho :D havent used the oven yet, but im looking forward to that next teehee. |
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Post by glamnana on Jun 3, 2011 16:15:34 GMT -5
Littledarkangel, When it rains it pours sometimes, yes? Sorry about the stove and the car break-in. Double whammy but your attitude really impresses me. Taking situations that are troublesome and turning them into positives really shows moxy! Hope you get the insurance thing figured out..I'll be thinking of you! Yes! and Thanks! Sadly we decided to take the loss :-/ Im out of a GPS, but the company my husby and i work for is buying him a new ipod. Soooooo i just gonna wait till the next iphone comes out. I am in love with my new stove tho :D havent used the oven yet, but im looking forward to that next teehee. Wow, your positive energy paid off! You got a brand new stove, and you will be getting an iphone! ;D |
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Post by glamnana on Jun 3, 2011 16:32:46 GMT -5
Well, I need some positive energy for my dd. She has fiannly gotten pregnant with her 2nd child at 37. They have been trying for about 2 years. She had a miscarriage last year in the first few weeks, so is kinda nervous. Will be 5 weeks next week, and is planning on having an ultrasound to check baby's heartbeat. (Who woulda thunk 20 yrs ago it would be possible to get a heart beat so early? ???) She has a friend who lost her baby at 5 weeks. Apparently the baby's heart stopped beating & she didn't know until ultrasound. Had to have a DNC. So, of course, dd is worried. Although she is a person who believes in positive thinking, I can tell she is having a hard time with this. And, as her Mom should, I have reassured her that all will be fine this time, but I am also kinda nervous. Anyhoo, you are all sooo good at sending out positive vibes to the universe, that I thought you could send a few her way. |
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Post by rihannsu on Jun 3, 2011 18:29:29 GMT -5
Well, I need some positive energy for my dd. She has fiannly gotten pregnant with her 2nd child at 37. They have been trying for about 2 years. She had a miscarriage last year in the first few weeks, so is kinda nervous. Will be 5 weeks next week, and is planning on having an ultrasound to check baby's heartbeat. (Who woulda thunk 20 yrs ago it would be possible to get a heart beat so early? ???) She has a friend who lost her baby at 5 weeks. Apparently the baby's heart stopped beating & she didn't know until ultrasound. Had to have a DNC. So, of course, dd is worried. Although she is a person who believes in positive thinking, I can tell she is having a hard time with this. And, as her Mom should, I have reassured her that all will be fine this time, but I am also kinda nervous. Anyhoo, you are all sooo good at sending out positive vibes to the universe, that I thought you could send a few her way. Hope everything goes well for her. When I was pregnant (ages ago) one of the women in my lamaze class had a still birth at 8 months. Horrible for her and nerve wracking for everyone else. My dear daughter decided to allay my fears decisively by spending the remaining month of my pregnancy kicking almost continuously. Never had a moment of doubt that she was gung ho and ready to rumble. Have you heard Scarlett Cherry's album "Labor of Love"? If you haven't checked it out yet please do, it would make a wonderful gift for her. They've also added some baby products at their online store, cut onesies and an organic body butter that Scarlett swears was heavenly. The website is laborofloveproject.com |
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Post by lynne on Jun 4, 2011 8:23:06 GMT -5
Well, I need some positive energy for my dd. She has fiannly gotten pregnant with her 2nd child at 37. They have been trying for about 2 years. She had a miscarriage last year in the first few weeks, so is kinda nervous. Will be 5 weeks next week, and is planning on having an ultrasound to check baby's heartbeat. (Who woulda thunk 20 yrs ago it would be possible to get a heart beat so early? ???) She has a friend who lost her baby at 5 weeks. Apparently the baby's heart stopped beating & she didn't know until ultrasound. Had to have a DNC. So, of course, dd is worried. Although she is a person who believes in positive thinking, I can tell she is having a hard time with this. And, as her Mom should, I have reassured her that all will be fine this time, but I am also kinda nervous. Anyhoo, you are all sooo good at sending out positive vibes to the universe, that I thought you could send a few her way. Sending lots of positive thoughts your way! |
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Post by lynne on Jun 4, 2011 8:24:51 GMT -5
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Post by FanOfTheMan on Jun 4, 2011 8:47:40 GMT -5
Well, I need some positive energy for my dd. She has fiannly gotten pregnant with her 2nd child at 37. They have been trying for about 2 years. She had a miscarriage last year in the first few weeks, so is kinda nervous. Will be 5 weeks next week, and is planning on having an ultrasound to check baby's heartbeat. (Who woulda thunk 20 yrs ago it would be possible to get a heart beat so early? ???) She has a friend who lost her baby at 5 weeks. Apparently the baby's heart stopped beating & she didn't know until ultrasound. Had to have a DNC. So, of course, dd is worried. Although she is a person who believes in positive thinking, I can tell she is having a hard time with this. And, as her Mom should, I have reassured her that all will be fine this time, but I am also kinda nervous. Anyhoo, you are all sooo good at sending out positive vibes to the universe, that I thought you could send a few her way. I know from experience what a scary situation this can be when it involves a dd. A loss at any stage is heartbreaking. The second time around for them/us, we were all sitting on pins and needles for the entire pregnancy, which went amazingly well and easy. The doctors have no explanation for a loss of a pregnancy, just that it happens. Hope all goes well with your dd and before long, you will be making a proud Grandmother birth announcement. 8-) |
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Post by glamnana on Jun 4, 2011 14:05:15 GMT -5
rihannsu, fanoftheman & lynne-- Awww, ty for your support. Was planning on buying her the Labor of Love cd, but will wait a while. I do realize that miscarriages happen for a reason. Probably something wrong with the fetus. :( rihannsu, Cannot imagine how heart wrenching a still birth must be, especially @ 8 months. I think the hardest part for me is being 1000s of miles away. However, she is very lucky to have an amazing dh, supportive extended family, and friends near by.
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Post by gelly14 on Jun 4, 2011 14:48:24 GMT -5
Well, I need some positive energy for my dd. She has fiannly gotten pregnant with her 2nd child at 37. They have been trying for about 2 years. She had a miscarriage last year in the first few weeks, so is kinda nervous. Will be 5 weeks next week, and is planning on having an ultrasound to check baby's heartbeat. (Who woulda thunk 20 yrs ago it would be possible to get a heart beat so early? ???) She has a friend who lost her baby at 5 weeks. Apparently the baby's heart stopped beating & she didn't know until ultrasound. Had to have a DNC. So, of course, dd is worried. Although she is a person who believes in positive thinking, I can tell she is having a hard time with this. And, as her Mom should, I have reassured her that all will be fine this time, but I am also kinda nervous. Anyhoo, you are all sooo good at sending out positive vibes to the universe, that I thought you could send a few her way. Sending all the positive energy I can send you and a big hug!! Everything will turn well!!  |
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Post by gelly14 on Jun 4, 2011 14:52:04 GMT -5
lynne I saw it today when you tweeted it. You are a proud mama, it must feel amazing to see your son going big Down Under!!! 
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Post by Deleted on Jun 4, 2011 20:25:38 GMT -5
Glamnana,My first wishes disappeared into the ethers, so you are going to get a double dose of hugs and positive wishes!! Kinda like winning the lottery of love..I do so hope this pregnancy goes well. I am sure it is a stressful time for you all. Mwah to that beautiful baby! Aren't the technologies something today?? It sounds as if your daughter has a solid support system. You are all in my thoughts, you lovely Atoper, you!
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Post by Deleted on Jun 4, 2011 20:36:37 GMT -5
Now this was fun!! Thanks for sharing, Lynne!! Dunno which gent is your son, but I went to their website and totally enjoyed their jam to MJ's Human Nature. They got quite the write-up for their stint in Australia also!! And their tour schedule..very impressive...around the world. I'd love to hear more about them. I know they are DJ'ing in Aussieville..their touring involves???? Thanks for sharing!  |
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, a Birthday celebration, for a person I've known since his birth! Darren is 46 now and has been living with ALS for 4 years! He is the father of 4 great kids! My parents are his parents best friends! His entire family, as well as, my entire family were there + many, many other dear friends. Darren is now on a respirator and feeding tube. But, he still communicates, as he has a computer like Stephen Hawking - we sometimes have to back-up our conversation, as he catches up and comments! That's not a problem, though. So happy he has a way to communicate! He has an amazingly positive attitude - despite his circumstances! Here's a link from a clinical trial at Stanford that his Mom got him into (she's a retired UCSF nurse) - stanmed.stanford.edu/2008summer/breath_of_hope.html . And here's a link from my Dad's SmugMug site - there are photos of him throwing out the first pitch at the A's first "Lou Gehrig Day" - jvp.smugmug.com/Darren-Dent . ALS is a cruel, cruel disease - you are slowly entombed in your own body - yet none of your brain is affected! 
