marysue
Member
Posts: 165
Location:
|
Post by marysue on May 29, 2011 13:15:41 GMT -5
Kapsiz - hope your friend's birthday party goes really well...ALS is the most awful disease. It's the one I've always worried about most - hard to imagine your body shutting down on you, but your mind staying alert to watch it all happen. I wish him a happy day tomorrow!
Littledarkangel - so sorry to hear about your car break-in, but I'm glad to see you are managing to look on the bright side! We all assume our things are safe until something like this happens...
Keep looking on the bright side!
|
|
|
|
Post by littledarkangelpf on May 29, 2011 14:05:08 GMT -5
Kapsiz - hope your friend's birthday party goes really well...ALS is the most awful disease. It's the one I've always worried about most - hard to imagine your body shutting down on you, but your mind staying alert to watch it all happen. I wish him a happy day tomorrow! Littledarkangel - so sorry to hear about your car break-in, but I'm glad to see you are managing to look on the bright side! We all assume our things are safe until something like this happens... Keep looking on the bright side! Thanks!  I always try to find the positivity in everything. I just makes life so much better. |
|
|
|
Post by gelly14 on May 29, 2011 14:10:25 GMT -5
kapsizI'm really sorry about your friend. You seem like a really nice person who cares about friends and family. I hope all of you will give him the best birtday party. Littledarkangel I'm really sorry to hear about your car break. I had the same experience two years ago, all the console of the car was damaged cause they were trying to pull out the cd. Its funny how all bad things happened to you, one after the other. Good thing though, all material stuff so everything can be replaced. Happy to see you're optimistic. AND I DO HOPE THEY WOULD CATCH THEM !!!!!
|
|
JazzRocks
Member
The Crazy Train is Ready to Roll!
Posts: 4,280
Location:
|
Post by JazzRocks on May 29, 2011 15:25:01 GMT -5
kapsiz - A young man I worked with developed ALS when he was in his 30's! It took forever for him to get a diagnosis, perhaps because Dr's thought someone his age wouldn't develop ALS. So so sad. I wish the best for you friend.
Littledarkangel - Really back luck with the car breakin. I've never had that happen. No one wants to steal my car. #grateful
|
|
|
|
Post by cassie on May 29, 2011 22:44:47 GMT -5
littledarkangel: So irritating that some cracked out kid thinks your stuff should be donated to his habit. No boundaries.
One thing to consider: I am hearing more and more experts say that you should not file small claims on your car or home owner's insurance. It can lead to higher premiums in the future, or being dropped. Insurance companies are very skittish these days, and all it can take is one or two claims before you become an undesirable. It may be cheaper in the long run to just pay for the replacements. Especially if you have a high deductible. Just a thought.
|
|
|
|
Post by littledarkangelpf on May 29, 2011 23:40:44 GMT -5
littledarkangel: So irritating that some cracked out kid thinks your stuff should be donated to his habit. No boundaries. One thing to consider: I am hearing more and more experts say that you should not file small claims on your car or home owner's insurance. It can lead to higher premiums in the future, or being dropped. Insurance companies are very skittish these days, and all it can take is one or two claims before you become an undesirable. It may be cheaper in the long run to just pay for the replacements. Especially if you have a high deductible. Just a thought. good point, we are gonna talk to the insurance guy on tuesday and see what he or she says. it's just crazy it happend to us twice now with the same car. We are planning on trading it in, at the end of the year. |
|
kapsiz
Member
that which we call a rose, by any other name would smell as sweet...
Posts: 1,337
Location:
|
Post by kapsiz on May 30, 2011 22:18:29 GMT -5
I had an amazing day today , a Birthday celebration, for a person I've known since his birth! Darren is 46 now and has been living with ALS for 4 years! He is the father of 4 great kids! My parents are his parents best friends! His entire family, as well as, my entire family were there + many, many other dear friends. Darren is now on a respirator and feeding tube. But, he still communicates, as he has a computer like Stephen Hawking - we sometimes have to back-up our conversation, as he catches up and comments! That's not a problem, though. So happy he has a way to communicate! He has an amazingly positive attitude - despite his circumstances! Here's a link from a clinical trial at Stanford that his Mom got him into (she's a retired UCSF nurse) - stanmed.stanford.edu/2008summer/breath_of_hope.html . And here's a link from my Dad's SmugMug site - there are photos of him throwing out the first pitch at the A's first "Lou Gehrig Day" - jvp.smugmug.com/Darren-Dent . ALS is a cruel, cruel disease - you are slowly entombed in your own body - yet none of your brain is affected!  If you are so inclined to, please donate to The ALS Association www.alsa.org/ , for yourself, for Darren or in Adam's name!  |
|
|
|
Post by SusieFierce on May 30, 2011 22:34:01 GMT -5
I had an amazing day today , a Birthday celebration, for a person I've known since his birth! Darren is 46 now and has been living with ALS for 4 years! He is the father of 4 great kids! My parents are his parents best friends! His entire family, as well as, my entire family were there + many, many other dear friends. Darren is now on a respiator and feeding tube. But, he still communicates, as he has a computer like Stephen Hawking - we sometimes have to back-up our conversation, as he catches up and comments! That's not a problem, though. So happy he has a way to communicate! He has an amazingly positive attitude - despite his circumstances! Here's a link from a clinical trial at Stanford that his Mom got him into (she's a retired UCSF nurse) - stanmed.stanford.edu/2008summer/breath_of_hope.html . And here's a link from my Dad's SmugMug site - there are photos of him throwing out the first pitch at the A's first "Lou Gehrig Day" - jvp.smugmug.com/Darren-Dent . ALS is a cruel, cruel disease - you are slowly entombed in your own body - yet none of your brain is affected! If you are so inclined to, please donate to The ALS Association www.alsa.org/ , for yourself, for Darren or in Adam's name! Awww, (((((kapsiz))))) thank you for sharing. That is heartbreaking. I don't know anyone directly with ALS, but know several people peripherally and from everything I've heard, read or seen it is the cruelest of diseases. Your body shuts down, but your mind doesn't, so you are the same intelligent, sensitive aware person who has lost the ability to control their body. Steven Hawking astounds me though. I've followed him for years and I've never known anyone to survive as long as he has. Have they determined that he has some other affliction and not ALS? His ability to keep breathing unaided seems contrary to ALS. I'm glad you were able to be with Darren and that he is remaining in good spirits. I will go check out the pics on SmugMug right now. Helping to provide him with great memories is probably the best gift you can give him now.  ETA: I was just looking at the pics, and those are amazing, Kapsiz. One question, is it just the uniform of a fan, or did he play professional baseball? There is a fascinating "Real Sports With Bryant Gumbel" that indicates a connection between head injury and ALS. Athletes fall victim at something like 4x the rate of the average person. They are mostly football players, but they traced Lou Gehrig's history back and he had several concussions as well. Here's one article: www.usatoday.com/sports/football/nfl/2010-08-17-als-head-injuries_N.htm |
|
Deleted
Posts: 0
Location:
|
Post by Deleted on May 30, 2011 22:35:01 GMT -5
I had an amazing day today , a Birthday celebration, for a person I've known since his birth! Darren is 46 now and has been living with ALS for 4 years! He is the father of 4 great kids! My parents are his parents best friends! His entire family, as well as, my entire family were there + many, many other dear friends. Darren is now on a respiator and feeding tube. But, he still communicates, as he has a computer like Stephen Hawking - we sometimes have to back-up our conversation, as he catches up and comments! That's not a problem, though. So happy he has a way to communicate! He has an amazingly positive attitude - despite his circumstances! Here's a link from a clinical trial at Stanford that his Mom got him into (she's a retired UCSF nurse) - stanmed.stanford.edu/2008summer/breath_of_hope.html . And here's a link from my Dad's SmugMug site - there are photos of him throwing out the first pitch at the A's first "Lou Gehrig Day" - jvp.smugmug.com/Darren-Dent . ALS is a cruel, cruel disease - you are slowly entombed in your own body - yet none of your brain is affected! If you are so inclined to, please donate to The ALS Association www.alsa.org/ , for yourself, for Darren or in Adam's name! Thank you for sharing your day at your friend's BD celebration!! You sound very upbeat and Darren's positivity is inspiring. I know little about ALS, so appreciate the links. I have a friend who has had MS for over 30 years. How she goes on day to day is beyond me. She has such spirit and a witty sense of humor after all these years, the complications, the flair-ups. Makes anything happening in my life look insignificant next to hers. HAPPY BIRTHDAY, DARREN!!!  |
|
Deleted
Posts: 0
Location:
|
Post by Deleted on May 30, 2011 22:43:37 GMT -5
Littledarkangel, When it rains it pours sometimes, yes? Sorry about the stove and the car break-in. Double whammy but your attitude really impresses me. Taking situations that are troublesome and turning them into positives really shows moxy! Hope you get the insurance thing figured out..I'll be thinking of you! 
|
|
I always try to find the positivity in everything. I just makes life so much better. 
